This morning started out good. Kyle got up and worked with the occupational therapist and did very well. He does really well in the am, but as the day goes on he gets pretty worn out. Then he had PT after lunch and he really wasn't feeling good. They tried to get him up in the standing frame, but his blood pressure couldn't tolerate it. It just makes you wonder if it ever gets any easier. For him I mean. Will there ever be a day when he gets up and actually has a good day all the way thru, not just a good morning. I hope that day comes soon because lord knows he needs it. Today has been tough emotionally on both of us. The girls went to the football game and got home really tired. Unfortunately Brooke was so tired she started crying and missing us. So when we called she was sad, which tore us both apart. Its so hard to hear her say she misses us and not be able to do anything about it. Shelley says this is the first night she has ever cried, but we knew it was probably coming. It wasn't ten minutes later and she was asleep. We are still counting down the days when we can see those two. I know its bound to make Kyle's recovery better.
To Kevin and Shelley, words can never express how greatful we are for what you are doing with our kids. We will owe you the rest of our lives. You couldn't be doing a better job. The girls seem happy and safe there with you. We just wanted to stop and say thank you and say we notice all the love you give our girls. Shelley hang in there girl I am sure it gets tough but you are a great mom and are doing great. My kids are so lucky to have the family they have. So once again thanks.
Kyle got to talk to some of the kids at school on skype which really lifted his spirits. He needed that. He said that he would be checking in on you guys often.
Thank you to Jeffrey, Lu, Dee, Ambra, Kaylen, and Ben for the Tech gear. It came at the right time, because hardly anyone here knows Tech. Thanks to the Tony Myers Family for the care package Kyle loved all the goodies especially the munchos. You are right the TM farms cap was his favorite. Thank you to all who sent cards, we have gotten so many I can no longer post them, which is amazing.
By the way Nana wants us to let everyone know thanks for all the birthday cards and birthday wishes.