So today was another rough day. Kyle got up this morning and got ready for physical therapy about 9 am. He is having really bad nerve pain so they started him on a pain medication specifally for nerve pain that is different than narcotics. He worked thru his pain for PT and did well. The longer he stayed up the better his pain got. We went outside and enjoyed another beautiful day here. Then we went and ate lunch in the cafeteria. At 1:00 was our conference and this is what they had to say. First of all Kyle has a bladder infection that I am sure is from the foley catheter. They will start treatment on it right away. Second, they say Kyle is not only different and original in spirit but he is in the structure of his body as well. Most peolpe have 7 vertebraes at the neck, which Kyle has, 12 vertebraes in the thoracic region and 5 lumbar vertebraes. Kyle only has 11 thoracic vertebraes so his injury is from T11 to L2. Because of how low his injury is, not only does he have damage to the spinal cord but also to the nerves that control bowel and bladder. Due to this his xray showed that he is abdomen is full due to the flaccid bowels. So they have already started that program. So here is what all of you are waiting for I'm sure is the prognosis. Not good. The Dr here describes Kyle as a level A complete spinal cord injury, which is the lowest the scale goes. That means the chances of him ever walking or being able to use his lower extremeties is very very slim, or as Dr. Maerz calls it a long shot. He did however say it wasn't impossible. He said Dr. Reeves did a wonderful job with the repairment and all looked well. He said that the spinal cord itself does not look as bad as some he has seen, which was good. He told us though he may never be able to walk again he will still be able to do everything he wants in life, and I believe that as well. I could tell by the look on Kyle's face he was upset, and I can't imagine how he must feel. All I can do is listen and give him a shoulder to lean on. The scale they use up here on spinal cord injuries is ABCDE scale with A being the worst and E being completely normal meaning you can use your extremeties. Dr. Maerz says that he will have to wear his brace for 12 weeks and that his status can change over time. Most people start to get something back in 6 months but the window is up to 24 months. We will just take it day by day and work with what he has today. If all of this wasn't enough he went outside for chair class and got nauseated and vomitted everywhere! Now he is in bed resting, finally. They gave him some meds for the nausea, so maybe he will get some much needed rest.
Oh by the way I forgot to mention our discharge date is 12-16-09. Which means we will hopefully be home for christmas!